September 5, 2025

September 5, 2025

So, I had another MRI today. I’ve lost count, it’s a bunch. Which is a good thing in cancer land, it means you’ve made it long enough to have had a bunch of them.

This one, in particular, was good news. It was still loud as hell, they all are, and I can’t access the results officially yet, but the tumor, while still there, is a lot less … present. The edema, (swelling), is also still there, but a lot less present. So, it’s still pressing on things it shouldn’t be, but nothing like a couple of weeks ago.

All of which means the Avastin (infusion) treatments are working. My doctor’s reaction yesterday was very positive, and my next steps will be to very slowly taper me off of the dexamethasone (steroids), because staying on those long term is a bad thing ™. Tapering off too quickly can also be a very bad thing ™, so it’ll be a very careful approach. As the steroids were the solution ™ to my left side paralysis, stopping them could also bring it back if we’re not very careful. I’m following directions, because duh, to try to limit any return of that shit, because fuck that. I like to be able to walk and eat with both hands, plus typing as you can see.

The rainbow is just a bonus from the trip home from the cancer center yesterday during some mechanical difficulties that my family was thankfully close enough to help us resolve along with a tow truck. It’s complicated, but it’s not like solving a brain tumor level of complicated or anything. And I’m not claiming we’ve solved anything, but the situation has improved for sure.

Also, there should be a comment section at the bottom of this post, recently added, and comments are very welcome. It’s been a 6 month fight, (so far), and it’s not over, I just can see a rainbow over it (for now), so I’m sharing some good news. I’m well aware that 6 months is nothing compared to what some people go through dealing with this shit, but I’m going to enjoy my current status while I can.

Medications: Avastin, (immunotherapy), Keppra, (anti-seizures), Vimpat (anti-seizures), Dexamethasone, (steroids, anti-swelling), Clobazam (anti-seizures, good shit, even at tiny doses), some other stuff.

Also using Optune, which is an electronic treatment device that blasts my little guest with pulses every so often and I wear 24/7(ish). It prevents cancer cells from replicating.

To be continued.