September 16, 2025
And I’m back. Avastin infusions are going well, all things considered. They keep feeding me Oreos, I’ll keep going. The Avastin is keeping the Edema (sp), swelling down around my little friend, which means my left side is functional, so that’s a win also. I’m still working on what I can do around the house, which is pretty limited to avoid falls, but I’m trying. I refer to it as the illusion of control, which is what I’ve been calling it since March pretty much. I’m capable of a limited set of tasks, most of which don’t include a lot of standing without assistance, mechanical or otherwise.
What I’ve started to focus on for the last few days includes puppies, which is a broad term that includes little bitties and larger varieties, all of which are currently occupying space in our adoption center. They have a couple different ways that I could potentially take one in, fostering, “Tails Out” which is basically just baby-sitting a slightly larger variety for a period of time, and anything in between. All of which would require assistance that I’m working on. We’ll see.
In other good news, I was able to take my partner out for her birthday (9/11, yes, she’s aware). I have another friend with MS who’s been complaining about ADA compliance for years, and I got a taste of it right in my face/feet. The restaurant had a set of ‘shops’ that were technically handicap accessible, but the button opened the inside doors, not the outdoor ones, and of course it was fucking raining at the time. And the indoor shops were all closed, as some employee gleefully informed me while watching me stand there in the fucking rain.
So, I found a shitty door/entrance to the restaurant in question, that had no handicap button at all, (apparently it was on the far side), and some guy at the bar inside realized I needed some help (mostly a napkin to dry off my very wet head), so he held the door for me, and we had a very nice dinner. Braised ribs for me with mashed potatoes and hericot verts (they’re green beans, get over it France), double crab cake meal with more of the same for my partner. Then there was the dessert, bread pudding with 3 scoops of vanilla ice cream that was absolutely amazing.
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